GOOD NATURE

S1E13 - Elijah Stacy - Fighting Duchenne Muscular Dystrophy, "Job's Not Finished", and A Small "If"

Mon, 29 Nov 2021 02:21:25 -0000

GOOD NATURE is extremely back. In this one, I pick the brain of Elijah Stacy, author of A SMALL IF (get it @ https://www.elijahjstacy.com/book-a-small-if) about his mental and physical approach to battling Duchenne Muscular Dystrophy, why he's excited about future treatments, how to celebrate the small wins while acknowledging the "job's not finished", meeting with Bezos, the LA Clippers and MORE.

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S1E12 - Emily Ladau -Author "Demystifying Disability"

Wed, 04 Aug 2021 00:12:26 -0000

Emily Ladau (https://twitter.com/emily_ladau) joins Good🌳Nature to talk about her very early start as a disability advocate on Sesame Street, pivoting career focus, her blog and podcasts, and what she hopes to accomplish with her new book "Demystifying Disability" (which I've read and it's great). You can preorder the book at Penguin Random House https://www.penguinrandomhouse.com/books/646508/demystifying-disability-by-emily-ladau/. Emily and I suggest grabbing the book from your local indie (like https://bluestockings.com/ in NYC) and learning a thing or 12 about understanding ALL types of disability and making the world more accessible.

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S1E11 - Jordan Adika & Tony Hartman - a Mental Game Plan for Physical Diseases, LGMD2i, Sadboyz

Thu, 06 May 2021 03:26:18 -0000

In tandem with Tony's new article on adidas's gameplan-a blog www.gameplan-a.com about the heaviness of 2020 as a person with a chronic condition and how it led to starting this show, Jordan Adika (fellow chronic condition-haver, podcaster, streamer, friend) joins from the UK to ask Tony a few questions and just catch up. We discuss the mental side of physical ailments, toxic positivity and much more -including Jordan's podcast Sadboyz (https://podcasts.apple.com/us/podcast/sad-boyz/id1296625412) and the Boss Baby (of course). Please follow Jordan https://twitter.com/jordanadika

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S1E10 - James Cassar -Life with Cerebral Palsy, Accessibility in Music & DIY

Thu, 22 Apr 2021 00:31:00 -0000

James Cassar (https://twitter.com/getcerebral) joins to talk about managing day to day life with Cerebral Palsy, building a more inclusive and safe music & DIY scene, live streaming making live music for accessible, James and friends' new not-for-profit record label and distro m00nphysics (https://www.moonphysics.com), and so much more -including Sheetz vs. Wawa AND the best blink-182 album.

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S1E9 - Yumi Shim - @DearLGMD, Navigating Life with Limb-Girdle

Wed, 31 Mar 2021 02:08:48 -0000

Yumi Shim, a Kid from Akron, joins to talk about living life with LGMD -everything from marriage to parenting to traveling. Yumi recently launched @DearLGMD on Instagram which is a growing community of LGMD patients and their stories told via audio recordings and visuals. We get into quite a bit, including her controversial claim that the Akron-area regional chain Swenson's Drive-In is superior to In-N-Out (which I don't totally disagree with).

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S1E8 - Lauren Ruotolo -McCune Albright Syndrome, Covid in New York City, and "Road to a Vaccine"

Mon, 15 Mar 2021 20:55:40 -0000

On the official 1 year mark of the pandemic, Lauren Ruotolo joined Good Nature to talk about being diagnosed with Covid in its early days on top of the challenges of her genetic condition, McCune Albright Syndrome. We discuss the scary symptoms and lengthy battle she had following her Covid diagnosis, her work across media including creating Johnson & Johnson's original series "Road to a Vaccine", and what New York City was like in March 2020. You can check out all-things Lauren, including her book Unstoppable in Stilettos at https://laurenruotolo.net/

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S1E7 - Diego Mariscal -CEO with Cerebral Palsy & Empowering Disabled Founders

Tue, 09 Feb 2021 02:05:26 -0000

Diego Mariscal talks about growing up with and managing cerebral palsy, becoming a Paralympic athlete in Mexico at age 12, and founding 2gether international after college. Diego spends every day working to educate and empower people with disabilities to launch their own startups, products, and businesses. You can get involved and reach out to Diego at https://2gether-international.org/ and https://www.facebook.com/2getherInternational

S1E6 - Keisha Greaves -Girls Chronically Rock, LGMD, and Adaptable Fashion

Mon, 11 Jan 2021 17:11:51 -0000

Keisha Greaves and Tony discuss dealing with the stages of getting a chronic condition diagnosis, struggling with workplace transparency around disability, her brand Girls Chronically Rock and the rise of adaptive fashion. Keisha rules and you check her out at https://www.instagram.com/girlschronically_rock/

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S1E5 - Chris Carrino -The Voice of the Brooklyn Nets talks Upcoming NBA Season, FSHD, and CRISPR

Thu, 17 Dec 2020 04:19:26 -0000

Brooklyn Nets and NFL announcer Chris Carrino hangs out to talk the upcoming NBA season (including the hype around Kevin Durant and Kyrie Irving finally taking the court together), his journey with FSHD and how manages things like travel, the progression of the disease, and even asking for help along the way. We also get into CRISPR and other upcoming treatments and potential cures for FSHD and similar conditions. Chris rules and you can support his ongoing fight to cure FSHD here https://chriscarrinofoundation.org/ and catch him on the radio all season long.

S1E4 - Nicole Evans -Osteogenesis imperfecta, Network TV Acting, and Empowering Disabled Employees

Thu, 03 Dec 2020 02:25:57 -0000

My friend and former coworker Nicole EvaNS joins the pod to talk about navigating Osteogenesis imperfecta, pursuing her goals in acting/life in general, and how to empower disabled employees, whether it's on screen or in the office. Nicole is currently on the VERY FUNNY Superstore on NBC and was previously featured on Freeform's Good Trouble.

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S1E3 - Ryan & Blake Benton -Stem Cell Therapy, Coming Together For a Cure

Thu, 19 Nov 2020 02:54:31 -0000

The Benton Brothers consist of Ryan, a musician and Duchenne Muscular Dystrophy patient that has had maintained the disease after years of stem cell therapy, and his younger brother Blake, who runs the foundation Coming Together for a Cure, which helps patients and families navigate the confusing but promising world of stem cell therapy. Because it's so rare and new, we hope to provide some insights, manage expectations, and de-stigmatize these work-in-progress treatments that hold a lot of promise for treating previously irreparable damage and untreatable chronic conditions. Get involved at https://www.ctfac.net/ and check out Ryan's smooth indie pop stylings at https://thesunshinedreamers.bandcamp.com/album/home-alone

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S1E2 - Eric Tobin -Spina Bifida, Hopeless Records, and Finding Community

Thu, 12 Nov 2020 00:58:51 -0000

Eric Tobin aka "Tobin" joins Tony to discuss his lifelong journey with the challenging condition Spina bifida while also being a VP at the long-running and very successful independent rock label -Hopeless Records. He'll talk about how he hiked to Everest Base Camp despite his physical challenges, how he found a sense of community and his path to the recording industry from attending punk rock shows as a teen, and shares his approach to managing the symptoms and perceived disadvantages of dealing with Spina bifida. We talk all that and more -including why he's optimistic about the music business during and after this pandemic. You can follow Tobin @etobinetobin, check out his roster of artists at www.hopelessrecords.com, and get involved and donate at https://www.spinabifidaassociation.org/

S1E1 - Wesley Hamilton -Disabled, But Not Really

Tue, 27 Oct 2020 23:21:15 -0000

Most known from Netflix's Queer Eye, daytime TV, and his foundation Disabled, But Not Really -advocate, adaptive athlete (and model) Wesley Hamilton joins to talk about his journey from gunshot victim to philanthropist, his new gym/resource center for his community in Kansas City, and working with the Biden-Harris campaign as a sounding board for disability policy.